Capacity Building

Our Project Goal

Our goal is to increase the use of patient-engagement in pulmonary fibrosis (PF) research so that research is meaningful for patients and care partners.

Who We Are

We are a group of patients, care partners, researchers, advocates and clinicians who are committed to increasing awareness about patient-engaged research and its critical role in developing studies that better address the needs of PF patients and care partners.

Project Staff

  • Ilene Hollin

    PROJECT LEAD

  • Sophia Kreider

    PROJECT COORDINATOR

  • Jen Wescoe

    PROJECT PARTNER AND ADVOCATE

Advisory Board

  • Bill T.

    PATIENT

  • Carol J.*

    CARE PARTNER

  • Dan H.

    PATIENT

  • Debra P.

    CARE PARTNER

  • Doug C.

    PULMONOLOGIST

  • Jane N.

    CARE PARTNER

  • John J.

    PATIENT

  • Karen C.

    CARE PARTNER

  • Keith S.

    PATIENT

  • Mary T.

    CARE PARTNER

  • Rudy B.*

    PATIENT

*In memory of Rudy Bell and Carol Jorgensen who left us far too soon. We are grateful for their contributions to this project.

To learn more about our project, visit our project page on our funder’s website.

This project is funded by a Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).