Your Experience Matters: Pulmonary Fibrosis Research For You, With You.
Patient-engaged research plays a critical role in developing studies that better address the needs of PF patients and care partners.
Watch our research team, physicians, caregivers, and patients explain patient-engaged research and what it means to them.
This video was funded by a Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).
“Patient-engaged research is very important because it gives patients and care partners a voice to express their real-life experiences to researchers. This information will be used for future research projects and to educate patients and care partners.”
- PF patient and board member
“You (patients, care partners) help to focus the research study on the person as well as the disease.”
- PF patient and board member